The Lili Claire Foundation was born from Keith and Leslie Litt Resnick’s dream to honor the memory of their infant daughter Lili Claire, by helping to improve the lives of children living with neurogenetic birth conditions, and creating services to support their families.

Lili was born on October 18, 1997. Soon after her birth, the Resnick’s learned that she had a neurogenetic birth condition called Williams Syndrome, which would result in life-long cognitive disabilities and medical challenges. Tragically, Lili passed away when she was five-and-a half months old, having undergone an 18-hour open-heart surgery to correct a severe heart condition common to Williams Syndrome.

Although she was only here for a short time, Lili inspired her parents to create The Lili Claire Foundation to help other children living with neurogenetic conditions. The Lili Claire Family Resource Centers address the special needs of these children today, and provide them with hope for tomorrow. Because of the support of people like you, the Lili Claire Foundation is able to provide all of these services free of charge.

We hope that you will join us in our efforts to serve more children living with Williams Syndrome, Down Syndrome, Autism, Fetal Alcohol Syndrome, and other neurogenetic birth conditions.